I haven't updated on Cooper's condition in a while, so I thought I'd let everyone know where we are right now. In my last post Cooper had had a seizure at church the last Sunday of spring break. I called his neurologist the next day and he said to up his dose of meds by half a mL. So we did and he went almost a week with no problems. Then that Saturday we went to the spring Texas Tech football game and during the game he began to seize again. Luckily we were in the club box, so we were able to get him inside and lay him down on the floor. It lasted about 3 minutes and then he stopped and fell asleep. He slept the rest of the game (about an hour) then he was fine. We went home for a little bit and then went to the Tech baseball game. About half way through the game, while eating nachos, he began to seize again. This time we didn't really have any place to take him, so laid him down in my lap across the bench. My biggest fear was that he had nachos left in his mouth and was going to choke. Thank goodness he didn't. It lasted about 2 minutes this time and then he slept it off for about 30 minutes. Then he woke up and was fine. He wanted to eat the rest of his nachos. Then, on the drive home from the game, he seized again for a 3rd time! We were only a couple of blocks from the house, so I told Joseph just to get home and then we could take him out of his booster seat. We pulled in the driveway and I jumped out and unstrapped him and put him in my lap. He stopped shortly after that, so it didn't last very long. I carried him in the house and sat on the couch with him while he slept. I called the doctor's service and talked to the operator. Our doctor called us back and said to give him a double dose of meds that night and then up it another half mL starting the next day. Everything was back to normal the next day (except that he was still being very hyper and acting very odd because of the drugs). We went a week and a half with no problems and then this past Wednesday I had a GYN appointment, so I left him at my neighbors house thinking that he would be fine leaving him for an hour or so. When I was leaving the dr office, I texted my neighbor to see if she wanted a Sonic drink and everything was fine at that point and she said yes, so I stopped at Sonic. When I got to her house, she opened the door and I could tell by her face something had happened. She said he had a seizure after I had texted her. She said he started shaking and fell over, so she put him on his side but he kept trying to reach out and grab toys. When he stopped shaking, he got up and starting walking around in circles but his eyes weren't really focusing on anything and he wasn't talking. She tried to get him to lay down so he could sleep it off, but he wouldn't. He went in the living room and hung upside down from the chair, so she got him down and turned on cartoons so he might lay down. I showed up at this point and he ran to me fussing, but he never said anything. He wouldn't talk to me and was very fussy, so I said let's go home. I told him to tell his friends by and he tried to say it, but it came out kind of garbled. We went to the house and sat on the couch. I turned on cartoons and got his blanket. He snuggled up to me and tried to say "Mommy", but again, it came out slurred. He quickly fell asleep then and slept it off for about an hour. I called his doctor again and they told me to up his meds again. That night, I thought he and I would stay home while Kaytlyn, Gage, and Joseph went to church, but he began to cry because he really wanted to go to church, so I agreed to let him go, but I was going to go to class with him. He was fine during class. After church, there was a meeting for the Bible Bowl kids and their parents, so I went with Kaytlyn and Joseph took the boys to play on the playground until we were done. When we came out, we walked to the car, but the boys weren't there. I remembered they were at the playground, so we walked across the parking lot towards them. I noticed Joseph was crouching on the ground and then I noticed Cooper on the ground and could tell he was seizing. I ran over to help Joseph. He was shaking and staring off into space, but his hands kept trying to grasp something. At one point he grabbed a handful of gravel and tried to put it in his mouth. He rolled over and it was like he was trying to look at me, but he couldn't. Then he tried to get up, so Joseph picked him up and he was fussing. So we went to the car and he fell asleep in the car. I called the doctor the next day, but they didn't want to up his dose again yet since I hadn't given him the upped dose since the last time I called them. He did think we needed to start him on B-6 to help with his odd behavior. So we started him on the upped dose and a B-6 pill with each dose. That's been 6 days and so far so good. The B-6 has done wonders for his behavior! He seems to be back to his old self. We continue to pray that we get the drug dosage correct so we can get these seizures under control.
We had a great Easter weekend. We got a nice surprise when my brother, Randy, decided to come to our house Thursday evening and rode with us to the ranch Friday. We spent Friday night at the ranch and then Saturday we had a full house! My sister-in-law, Kim, my niece, Paisley, Kim's mom, Kim's sister, Joseph's brother, Tim, his wife, Misty, my niece Brooklyn, Misty's mom and her mom's male friend, Misty's grandmother, Joseph's mom, and my mom and dad all came out. The bluebonnets were BEAUTIFUL so we took the cousins out to the pasture to take pictures. That was interesting! 5 kids ages 10 years old to 9 months; trying to get everyone to look at the camera at the same time...ARGH!!! We managed to get a couple of acceptable pictures. Then we went back to the house and had lunch - ham, mashed potatoes, deviled eggs, salad, broccoli and rice casserole, corn casserole, and desert. YUM!! After lunch we had an Easter egg hunt for the kids. Brooklyn and Paisley went first and then my kids hunted their eggs. Brooklyn really got the hang of picking them up and putting them in her bucket. Kim would hold Paisley over the eggs to pick them up and she would grab her ear everytime they bent over. It was pretty funny. Everyone left after the egg hunt and we went fishing that evening. Joseph was the only one to catch a fish and then a big storm blew in. It brought a little bit of pea size hail, but a LOT of rain. It was so wonderful to go to sleep that night listening to the rain fall on the roof. The next morning we went to church with Joseph's mom and then came back to the ranch for lunch. The kids dyed Easter eggs while Joseph and I packed up our stuff and loaded the car. After they decorated their eggs, Uncle Randy went and hid them all around outside the house. Kaytlyn and Gage took their BB guns and went on a real egg "hunt". They had a blast! Then we headed back to Lubbock.
This was probably the best picture of the 5 of them I was able to get.
My precious kiddos!
I have a lot more pictures, but for some reason my blog isn't cooperating and letting me post them. Oh well. They're on my facebook page if you're interested.
I'll try to update again before long on how Cooper is doing. Please keep him in your prayers in the mean time. We really appreciate it!
